Donor Hero: Sofia Waters - our little Angel

December 29, 2018


Our beautiful Sofia lost her battle with CHD and 22q11 on the 28th April 2018 after her 4th open heart surgery.  Sofia was 3 years old.  Sofia donated her liver and kidneys.  We have found her liver recipient but not her kidney recipient.

Sofia endured more in her 3 years than most adults do in a lifetime but she was always happy and full of love.  We are blessed to have had 3 special years with her. 

Our mission is now to raise awareness for CHD and 22q11 through her Facebook page Sofia's Battle and special events. 

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